My matter is God's Matter.
2010-05-08 12:41AM / 標準BLOG
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I woke up and felt sadness in my heart. i kept asking God "when" will this suffering end but then deep inside i already knew...
The
past few days ive been preparing myself for the NMDP (National Marrow
Donor Program) in D.C. on the 27th of this month. There is a huge
meeting happening there and they have invited me to speak of my story.
I was super honor and knew God had me going for his work.
So as
you all know, 5 years ago i had a Bone Marrow Transplant. It was a
successful procedure that I'd never thought could happen, especially
when i was a minority.
Family,
last night when i was studying more on the different types of illness
that needed a transplant i found myself in tears. My love for all those
who is suffering and those who needed a Bone Marrow Transplant done
desperately made me realize that "Today" wasn't just another day. Every
single day matters, not only for myself but for my brothers and
sisters.
What is a Bone Marrow Transplant?
A bone marrow transplant is when special cells (called stem cells) that
are normally found in the bone marrow are taken out, filtered, and
given back either to the same person or to another person.
Why is it done?
Bone marrow produces stem cells. These stem cells eventually develop
into blood cells. Bone marrow is a critical part of the body because it
is the body's main blood cell "factory." If something is wrong with the
marrow, a person can become very ill, even die. In diseases such as leukemia and aplastic anemia,
the bone marrow is unhealthy. The purpose of a bone marrow transplant
is to put healthy stem cells in place of the unhealthy ones. This can
treat or even cure the disease.
Did you know...
At any given time, over 6,000 patients from all over the world, and of all ethnicities, are searching the registry for a match.
Patients will find a match from their own family only 25-30%
of the time. The other 70-75% of the time, patients must find an
unrelated donor.
Ethnic Minorities have a 30-40% chance of finding a match from
the existing NMDP registry. Caucasians have an 80% chance of finding a
match from the existing NMDP registry.
Approximately 50% of all Ethnic Minority donors will NOT push
through with donating if called as a possible match for a patient.
(whether because they are unreachable, they say “no”, or become
medically ineligible). Whereas over 70% of Caucasian donors WILL
proceed with donating if called as a possible matched.
The current NMDP registry has more than 7 million registered donors.
BUT…
Only 25% of the current U.S. National Registry consists of
Ethnic Minorities (Asian, Pacific Islander, African American/Black,
Hispanic/Latino, Native American, Multi-Race)
My friends, isnt this why Jesus Christ died on the cross for us? One Life for All.
why have we forgotten that? The example of God's love for us is always
existing by one act of kindness, a special calling, a small sacrifice,
and even a simple notice of a prayer being answered by you.
Amy has the most severe subtype of Fanconi
anemia (FA-FANCD2), a very rare and life threatening genetic disorder.
FANCD2 progresses faster and earlier than any FA subtypes. Amy is only
2 years old. Considering that Amy has 10+ abnormalities with her blood
disease, she defeats her everyday (basic) challenges and obstacles with
a lively spirit and strong will. Amy is a happy baby and has beautiful
smiles, she loves to sing, dance, and give hugs to everyone. She needs
a bone marrow transplant due to bone marrow failure and dropping blood
count. Please help Amy and other patients like her by registering
today!
Patrick Tran, 14, is bright student with
straight A's and dreams of attending West Point Military school to
later make a difference in society. Born before the holiday, St.
Partick's day, Patrick was diagnosed with leukemia (ALL) this year. He
needs to find a match. Please register yourself to help Patrick and
patients like him, YOU can help make a difference.

My name is Emily. I have 3 kids. Five years
ago, I was diagnosed with Acute Lymphoblastic Leukemia, and I have
already had two transplants. The first transplant was a self
transplant, but I relapsed after 9 months. The second time around, I
went through chemotherapy but couldn’t find a donor to match me. So I
went ahead and had a cord-blood transplant. It has been three years
since my cord-blood transplant and my body is weakened again. This time
around I really need to find a matching donor in order to survive. My
youngest son is only six. I cannot imagine my children without their
mother.
Every time I am in the hospital, they always call and ask when I will
be coming home. They need me, and they have been through so much
already. I want to live, to live for my children. A matching donor is
my last chance for survival. Please help me…
Natalie is 8 years old. She has a little brother, Sean, and lives in the San Francisco Bay Area.
After five difficult rounds of chemotherapy last year, Natalie’s
leukemia was in remission. Now it’s back and we have just weeks to find
the bone marrow donor match that Natalie needs to save her life.
Natalie's greatest chance for a match is from those of ASIAN descent.
Please help us spread the word through the Asian community.
Connor is a beautiful 4-year old who is an avid
swimmer, loves all things Ben10, and considers the Little Mermaid his
girlfriend. In May 2009, Connor was diagnosed with X-linked Hyper IGM,
a rare immunodeficiency that causes patients to succumb to liver
cirrhosis or lung infection at an early age. Connor never complains
about the monthly blood transfusions or about the innumerable flus,
stomach aches and other infections he’s had since he was born. Connor
is in an urgent need for a bone marrow donor. YOU can be the one to
save him or others like him by registering to be a bone marrow donor.
savingconnor.com
There are so many more patients who need us, our love, our simple "Act
of kindness" to help answer their prayers. I didnt have a match through
3 of my siblings, i didn't even have an unrelated donor, the miracle
was by a "Cord Blood". Dont let the options be limited for them and
dont let it be to late.
To Join the Registry please visit www.aadp.org or www.marrow.org
"My matter is God's matter, my purpose is his purpose."
Love, Mary Ly
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