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  • Hello Family, God is Good.

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  • My matter is God's Matter.

    2010-05-08 12:41AM / 標準BLOG / 會員可以看
    2個評論

    I woke up and felt sadness in my heart. i kept asking God "when" will this suffering end but then deep inside i already knew...

    The past few days ive been preparing myself for the NMDP (National Marrow Donor Program) in D.C. on the 27th of this month. There is a huge meeting happening there and they have invited me to speak of my story. I was super honor and knew God had me going for his work.
    So as you all know, 5 years ago i had a Bone Marrow Transplant. It was a successful procedure that I'd never thought could happen, especially when i was a minority.

    Family, last night when i was studying more on the different types of illness that needed a transplant i found myself in tears. My love for all those who is suffering and those who needed a Bone Marrow Transplant done desperately made me realize that "Today" wasn't just another day. Every single day matters, not only for myself but for my brothers and sisters.

    What is a Bone Marrow Transplant?
    A bone marrow transplant is when special cells (called stem cells) that are normally found in the bone marrow are taken out, filtered, and given back either to the same person or to another person.

    Why is it done?
    Bone marrow produces stem cells. These stem cells eventually develop into blood cells. Bone marrow is a critical part of the body because it is the body's main blood cell "factory." If something is wrong with the marrow, a person can become very ill, even die. In diseases such as leukemia and aplastic anemia, the bone marrow is unhealthy. The purpose of a bone marrow transplant is to put healthy stem cells in place of the unhealthy ones. This can treat or even cure the disease.

    Did you know...

    At any given time, over 6,000 patients from all over the world, and of all ethnicities, are searching the registry for a match.

    Patients will find a match from their own family only 25-30% of the time. The other 70-75% of the time, patients must find an unrelated donor.

    Ethnic Minorities have a 30-40% chance of finding a match from the existing NMDP registry. Caucasians have an 80% chance of finding a match from the existing NMDP registry.

    Approximately 50% of all Ethnic Minority donors will NOT push through with donating if called as a possible match for a patient. (whether because they are unreachable, they say “no”, or become medically ineligible). Whereas over 70% of Caucasian donors WILL proceed with donating if called as a possible matched.

    The current NMDP registry has more than 7 million registered donors.

    BUT…

    Only 25% of the current U.S. National Registry consists of Ethnic Minorities (Asian, Pacific Islander, African American/Black, Hispanic/Latino, Native American, Multi-Race)

    My friends, isnt this why Jesus Christ died on the cross for us? One Life for All. why have we forgotten that? The example of God's love for us is always existing by one act of kindness, a special calling, a small sacrifice, and even a simple notice of a prayer being answered by you.


    Amy has the most severe subtype of Fanconi anemia (FA-FANCD2), a very rare and life threatening genetic disorder. FANCD2 progresses faster and earlier than any FA subtypes. Amy is only 2 years old. Considering that Amy has 10+ abnormalities with her blood disease, she defeats her everyday (basic) challenges and obstacles with a lively spirit and strong will. Amy is a happy baby and has beautiful smiles, she loves to sing, dance, and give hugs to everyone. She needs a bone marrow transplant due to bone marrow failure and dropping blood count. Please help Amy and other patients like her by registering today!



    Patrick Tran, 14, is bright student with straight A's and dreams of attending West Point Military school to later make a difference in society. Born before the holiday, St. Partick's day, Patrick was diagnosed with leukemia (ALL) this year. He needs to find a match. Please register yourself to help Patrick and patients like him, YOU can help make a difference.



    My name is Emily. I have 3 kids. Five years ago, I was diagnosed with Acute Lymphoblastic Leukemia, and I have already had two transplants. The first transplant was a self transplant, but I relapsed after 9 months. The second time around, I went through chemotherapy but couldn’t find a donor to match me. So I went ahead and had a cord-blood transplant. It has been three years since my cord-blood transplant and my body is weakened again. This time around I really need to find a matching donor in order to survive. My youngest son is only six. I cannot imagine my children without their mother.
    Every time I am in the hospital, they always call and ask when I will be coming home. They need me, and they have been through so much already. I want to live, to live for my children. A matching donor is my last chance for survival. Please help me…



    Natalie is 8 years old. She has a little brother, Sean, and lives in the San Francisco Bay Area.
    After five difficult rounds of chemotherapy last year, Natalie’s leukemia was in remission. Now it’s back and we have just weeks to find the bone marrow donor match that Natalie needs to save her life. Natalie's greatest chance for a match is from those of ASIAN descent. Please help us spread the word through the Asian community.



    Connor is a beautiful 4-year old who is an avid swimmer, loves all things Ben10, and considers the Little Mermaid his girlfriend. In May 2009, Connor was diagnosed with X-linked Hyper IGM, a rare immunodeficiency that causes patients to succumb to liver cirrhosis or lung infection at an early age. Connor never complains about the monthly blood transfusions or about the innumerable flus, stomach aches and other infections he’s had since he was born. Connor is in an urgent need for a bone marrow donor. YOU can be the one to save him or others like him by registering to be a bone marrow donor.
    savingconnor.com


    There are so many more patients who need us, our love, our simple "Act of kindness" to help answer their prayers. I didnt have a match through 3 of my siblings, i didn't even have an unrelated donor, the miracle was by a "Cord Blood". Dont let the options be limited for them and dont let it be to late.

    To Join the Registry please visit www.aadp.org or www.marrow.org

    "My matter is God's matter, my purpose is his purpose."

    Love, Mary Ly

BLOG評論 (2)

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  • D.Y._Sao
    藝術家空間 
    留言於2010-06-04 1:01PM [举报]
    you inspire me!
  • MissScarlett
    留言於2010-05-09 9:17AM [举报]
    I don't think enough is done to encourage pregnant women to donate their baby's cord blood! We donated our son's when he was born. I remember when my doctor gave me the info on it. I thought, "how cool is this? Something I don't even need, something that will get thrown away(!) can save lives??!"  It was completely painless for both of us and didn't cost anything either! I have a niece who is pregnant right now. Thank you, Mary, for the reminder. I'm gonna go message her right now before I forget!

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  • Mary Ly was born in St Paul, Minnesota. Hmong American. Model, Dancer, Actress. Home is in Los Angeles California. But She now resides Honolulu HI....

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  • 職業:  演員模特兒現代舞
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Mary Ly 邀請你瀏覽許多官方藝術家空間並加入他/她的粉絲圈。趕緊註冊,創建你自己的空間,跟好友及喜愛的電影工作者、音樂家及其他藝術家交流。